Shiloh Pepin was born in 1999; she was born with Sirenomelia, also known as Mermaid Syndrome. Sirenomelia is a very rare congenital deformity in which the legs are fused together from the waist. This condition is found in approximately one in 100,000 live births and is usually fatal within a day or two of birth (Wikipedia). In all medical records, only 4-8 cases can be described as Mermaid Syndrome. Yet, Shiloh was the only one who couldn't have surgery, due to her kidney failure; therefore, she was the only living mermaid. “It feels pretty good,” says Shiloh (TV show, Extraordniary People). Shiloh had no rectum, genitals, uterus, bladder and only a quarter of a kidney. When Shiloh turned 4 months old, her kidney failed. She was subsequently on dialysis. At age 2, Shiloh underwent a kidney transplant that lasted several years. And in 2007, a second kidney transplant was successful. She was born without openings to expel urine or feces; therefore it was necessary to create openings. His excretions were collected through bags attached to his body where openings had been made. Elmer Pepin, Shiloh's father, quit his job to care for her 24/7, while Leslie Pepin, Shiloh's mom, had to work. Shiloh needed constant medical care; He has been going to the medical center since birth. Twice a day, Shiloh must consume a complex cocktail of nine different drugs to prevent her from contracting infections. She never got used to the taste. Leslie (Shiloh's mother) questions the decision to give birth to Shiloh; he knew that even if Shiloh lived a long time, he would suffer every day. “It's too hard for her, and I was selfish,” Leslie says. By the time she was 8 years old, Shiloh had undergone over 150 medical procedures. "All this time I've been sick, I can't take it anymore" she says. He suffered from obesity, due to which he had mobility problems. “I'm sorry,” Shiloh said when she was weighed at the hospital. Dr. Matt Hand, Shiloh's doctor since birth, ordered a serious diet for Shiloh. Shiloh deeply hated the diet. As time went on, fatty tissues built up on the sides of Shiloh's legs, which made mobility very difficult for Shiloh. That's why she relied on one hand to sit up straight. The leg separation procedure was dangerous for two main reasons: Shiloh's kidneys were weak and the blood vessels were irregularly confused from her waist to the soles of her feet.
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